Favorite Links

The following are links to some resources and other important sites.

 

 

 

Tacey was honored to have a special guest, Erick Olson.  Erick is a professional magician.  Tacey loves magic and performing for family and friends!  It is fun to see a blind child doing optical illusions!  The local news came to watch Erick teach Tacey some new tricks.  They then interviewed everyone.  Click on the link to read the story from the news and to watch the news clip.

 

 

Retinoblastoma International is a great resource about Retinoblastoma.

 

 

Sena was diagnosed with bilateral retinoblastoma at four-months-old. Her pediatrician referred us to an ophthalmologist because she noticed a white reflex instead of red while performing an eye exam at her well-child exam. Sena began chemotherapy four days after diagnosis, on November 6, 2001, her brother's second birthday.

 

 

My beloved grandson, Joseph Hollander Bergsma, died needlessly from metastatic retinoblastoma on December 22, 2000.  Joey was three years old.  Awareness would have saved his life.  I was taking pictures of the tumor reflecting the light and did not know it…these pictures would have saved his vision and his life.  More importantly, if an ophthalmoscope would have been used to screen his eyes at his 15 month or 18 month well-baby exam…Joey would be alive.  Joey’s journey was short, but his message is powerful.  The last year of his life was a miracle.

 

 

 

Welcome! Thanks for stopping by the Braille Superstore. We have tons of Braille books and cool products to choose from; so grab a cup of coffee, relax, and we'll give you a quick tour.

 

 

Retinoblastoma is a rare tumour of the eye which develops in the cells of the retina, most patients are under 5 years old. Sometimes only one eye is affected (unilateral-retinoblastoma ), but in about two fifths of patients both eyes have the disease (bilateral-retinoblastoma ). Some cases are known to be hereditary.

This page contains links to information specifically related to Retinoblastoma, other relevant resources are availible via the Main Menu of Children's Cancer Web.

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